Feeding Matters

Feeding Matters

If you’ve been a loyal reader (and by my analytics and subscribers that’s around 400 of you now) then you’ll notice that there’s a new button on my website. I’m not asking any of you to do anything with it. I just wanted to explain why it’s there.

My daughter has a very complex feeding disorder. There are many people who have many feeding issues. Hers stems from a severe oral aversion due to sensory processing disorder and multiple extensive gastrointestinal disorders. Our journey with food hasn’t been a pleasant one from the jump. I can tell you from certainty that if it weren’t for the circle of girls that I call “my tribe praying circles around me and being my “safe place” so many times, being a place I could be honest, having those “coffee morning’s on Jenn’s couch” that were really suppose to be for an hour that turned into several and all the hugs and gut-wrenching laughter . . . I don’t know how I’d be able to stand so tall today and feel as strong as I do. Truly, our journey hasn’t been easy and it was from the beginning; from the days at the breast, when nursing her, even, that we knew there was a problem. They can attest to this.

So after over two years in feeding therapy (and with the BEST therapist, by the way) we’re getting into a very extensive inpatient feeding program out of Texas. Prayerfully insurance is going to pay for part of it . . . oh, that’s another prayer request. Our insurance is being dropped on February 18th. We need big prayers from a big God!! Please!

That being said, even with insurance (we’re believing for a miracle, that we’ll find a way to keep it), it’s still going to be pricey and it’s not something we have funds for. We are fully going knees down, believing for supernatural provision. Now is the time. Her weight is at a good weight and health wise she’s the best she’s ever been, we have to do this now. Her doctors agree and her feeding therapist is the one who recommended that we give this serious consideration, and we did. There will be many emotions, many expenses, and a family divided. My husband and oldest daughter will stay home in Oklahoma while my little one and I head to Texas (IF everything works out like we’re praying and hoping for, otherwise we’ll be headed to Colorado; nope – I don’t like that. I hear it’s beautiful and I’d love to visit but my body can’t handle the cold right now.)

With staying in a facility out of state, this means more expenses. We’ll be spending a lot more money than we can afford to pay for hotel stays, fuel, food, and any other expense that I’m not aware of yet.

Today is Daddy’s Birthday! She ate some of the frosting off her piece of cake! #winning

The first opening for the treatment center in Texas is in April (there was sooner availability in Colorado but they are self pay only so we are trying Texas first), and we’ll go for our assessment at that time. That’s in two months. We just need big prayers.

Anyway I’ve had a few people ask me why we haven’t started a “Go Fund Me” page for her treatment for feeding therapy since it’s going to cost between $20,000 – $100,000. Simply, I haven’t. But I thought . . . I can just put a button on my blog. If family/friends want to help us out, there will be an easy was for them to do so, by donating through my blog to help fund our trip to Texas for her assessment in April and hopefully her following treatment there.

It’s going to be a big year for us. Posie is likely going to be getting Botox injections in her stomach again, she’ll also possibly be having the pyloromyotomy and/or gastric pacemaker and we know now if she gets the pacemaker we’ll be flying out to Ohio to have that done, so there’s potential for a lot of traveling this year. Ohio, Colorado, and Texas. We’re praying that we get into the hospital in Texas and get to stay there for the full treatment and won’t have to go anywhere else. Pray with me, please.

So that’s why there’s a donate button on the page. I started to write: Help Send Posie To Therapy on it but it was all bold, black, capital letters and looked like I was screaming and I couldn’t change the font so I deleted it; I don’t want to yell at anyone, lol! Have mercy, those bold capital letters looks so mean and loud sometimes!!!

I’m so thankful for my little community of followers that will pray for us. Your prayers mean so much and I love you so dearly.

“Let us hold unswervingly to the hope we profess, for he who promised is faithful.” Hebrews 10:23