We had a long night last night, she cried off and on during the night and at one point I had to get up and carry her to the bathroom because she was asleep but talking nonsense (she sleep talks but when she cries with it, it’s b/c she needs to use the restroom). She was in a good mood when she got up this morning but it was short lived, followed by tantrums, and lots of crying. She weighed in and has lost weight this time. She went to OT and then to feeding therapy and ate super great at breakfast and then came back to the room to throw some more shade at me.

I took her to speech therapy and her therapist walked in with a couple of other therapists, smiled at me and told me, “Go take a break”. She didn’t have to tell me twice. She took Posies hand just as I was letting go and I went right back to our room. I wasn’t alone long before one of the psychologists showed up to talk to me. She’s scheduled time to come back and see me tomorrow and some other days this week.

Posie did really good at her next few therapies and she did start asking several times about her afternoon bottle and cried (for a brief period) for her bottle. I explained we’re just going to have a bottle in the morning and evening now and she said, “I don’t think I can handle that!”, and start crying some. I assured her I thought she could and asked why she thought she couldn’t. She cried and ignored me and eventually went back to playing, successfully ignoring mom.

She did have a good 15 minutes of fun outside with the Child Life Specialist before her afternoon snack. I was there for it and she talked to both of us and even smiled. She also let another little boy play around her. She received some surprise mail and that seemed to really perk her up. A card from from, a card w/stickers from a someone we’ve never met (we share a mutual friend), and then a unicorn lovey plush from her best friends grandma! She is very happy about her lovey! The past 72 hours have been so hard, I’m almost already exhausted thinking about tomorrow. I’m ready to pack it up and go home but now is when we dig deep. Please pray for Posie!