Last night was great! My daughter ate yogurt. This is huge b/c she used to vomit looking at it. I’m actually not kidding. She ate spaghetti w/marinara, grapes, and vanilla yogurt for dinner. We had a much better evening yesterday evening than we’d had all week and this morning she was in a pretty good mood. It’s kind of perfect that the weekend is here. The weekends are hard here but she’s been working so hard that she actually maybe needed the weekend to come, to be able to chill a bit. And her “best friend” was here today so that was great! Random thought . . . I haven’t proofread a single blog the past month b/c it’s just a glance at our day, geeze. I’m the queen of fat fingers so sorry for every mispelled word that probably exists.

I got up super early this morning to work on something that was on my heart and I had to get it done so I could stop thinking about it. Then tomorrow I’ll be doing the same thing (getting up early) b/c I’ve got a work project I need to get up and work on. But I can’t seem to get to bed tonight.

Posie and I did have some difficulty with feeding today, there was some pushback, but then it went smoother. We had some meltdowns in the room but they were nothing like they were this past week so I could handle them. We played a few games of Trouble and she kept winning (I won once) and then the dr came in and asked her if she could play too. Aura came in and got her to go play in the playroom for a bit and then they went outside to play and I’m glad b/c later it started pouring down rain so I couldn’t take her.

Did I mention that her SLP told us that her best friend is naming her daughter Posie? Yes! She asked why we called Posie that and I explained she got her name from her sister, from the song, “Ring around the rosy, pocket full of posies”. . . rosie posie. But her best friend is just naming her daughter that and she was so excited to tell us. Wow, how funny!

We’re in our last week here and I’m so excited about that! I wish we could take Ms. Meka home with us. She’s probably the most fun and fantastic lady I’ve ever met, when she sings you melt like butter, and she just adds value to everyone’s life. Everyone needs a “Meka” around. It’s going to be interesting to see how things go when we get home but we’re going to make them as similar as possible to what we’re doing here. That’s the plan (ours and the team here). If I haven’t said it before, or even lately, I love our OT. Over the past three years she’s done so much for Posie, for us, and we wouldn’t be here if it weren’t for her. I am just so thankful for her.

If tomorrow promises anything it’s that there will be some challenges. And everyone here has warned that in this last stretch it’s probably going to continue to be more difficult so please pray for me to get rest and have grace, and Pray for Posie!