It’s 4 PM and I’m just counting down the hours of the day. It’s been a really busy day today. We had a busy morning with therapies and have had a lot of people in and out of our room all morning (PT/OT/InsuranceCoord/Dietary/Registration) and we had our final Huddle. WHAT!? Our LAST team meeting! I can’t get over this! It’s really here, we’re really at the end of the road here! Wow!

We met someone new today and she was super sweet, her name is Hailey, and she is a feeding tech. She’s sweet, has a fun, raspy voice, and I love to listen to her talk. She was our feeding tech today while Ms. Meka is out. Posie was really excited, while I went to the meeting she got to hang out with her bestie, Aura, and was given a snake. Well okay then! LOL The kids are getting snakes up here, she thinks it’s fantastic, she’s so excited to show sissy, who is a lover of all creatures.

During the meeting her O.T. said she definitely will need to continue to do things involving certain textures and also working on strengthening (again mentioning her weak obliques) and today they worked on a book for her to take home. Her SLP told me that she’s doing so great and that I need to stick to her 4 structured meals a day with the menu they provided for at least 4-6 weeks before introducing other foods into the menu (even though there are several things she is eating now, she needs to eat what they put on her menu) and that I’m not to introduce new foods unless she specifically asks to try something, and then she can have the tiniest bit of it. Otherwise, they want her therapist back home to continue to introduce new foods to her under her care. Except they are going to try to introduce cupcakes this week in therapy (you know because we have a birthday coming up)! Dietary wise, she had a jump in weight over the weekend and the dietician said if that happens again in this week that will be a good indicator that we’re in the right direction going home to start scaling back more on the Pediasure. I’m confident going home, either way, b/c we’re going to be met with back to back appointments for her in the next two months. A few days after we get home we see one of her dieticians, then we see her pediatrician for a weight check, and then her OT, then she starts speech therapy at school in summer school, then her eye care specialist, then her neurologist, then her pediatrician again for her well-child appt, then GI, and her other dietician.

We got to go outside to play with her bubbles again and she really enjoyed that. Child Life met with us after her lunch session earlier and told me that they’re planning on taking her for two hours on Wednesday, from 1pm-3pm, and they want me to get a hot meal and relax for a while. They said they want me rested up for the last two days here. Wow, that’s nice of them! She’ll play in the playroom for 30minutes, then go to OT for an hour and then go to a Cook Group for 30 minutes. Now, I can say with certainty right now that I’m not about to worry with going to eat, I’m all about taking a shower without an audience and having some quiet time w/the Lord (and maybe read in a book for a bit). I can skip the meal, but thanks! I welcome the rest!

The first weekend home is going to be a challenging weekend. There will be a lot to do. Not only will there be laundry, unpacking, and getting Posie readjusted to her life back home, but there are other things that I’ve got to take care of now concerning my oldest when she gets home from camp. Something happened this past week and it’s left me with an ache in my heart, I’ve cried and cried, and there’s no way for it to ever be undone. I just need a lot of prayer for the situation. I’m asking God for His grace to help me guide my daughter through this and that He would show up big for her right now. I’m pleading. Please pray for Zoey. This week may possibly be the toughest week we’re going to have here, and with the real sights of home coming up, I ask that you please pray for Zoey & Posie!