It’s nearly 9 PM and I am so thankful that this day is over. It hasn’t been a very hard day, certainly not from looking back on the week that we had last week. We stayed pretty busy today and the meltdowns were tolerable and minimal. But last night was a pretty long night, she woke up constantly asking for her milk. She wasn’t crying and throwing a fit like the first couple weeks here, but constantly wanted to know if it was time and so neither of us slept much.

We had a lot of people in and out of our room again today, insurance, surveys, psychologists, therapists, etc. Everyone’s coming in with last minute stuff, getting things together since we’re heading home soon. I can’t believe it’s almost time. We’re really going home in 3 days. THREE DAYS! WooHoo!

We got to go outside and play for half an hour and we did some more laundry (her idea not mine). I thought we wouldn’t have to wash laundry again until we got home, because I know when we get home that I’ll be throwing everything we have into the washer, but she insisted that she needed her “mermaid” pants cleaned. She likes the color of the hearts on her pants and says they are the same color as a mermaid, and so we did, we washed her clothes.

She did really well in feeding therapy but at dinner time she vomited everything up. Gross. So gross. I don’t know why it grossed me out so much, I mean I’ve been cleaning her puke for 5 years now so it shouldn’t phase me. Well I guess it was different this time. You see during feeding therapy there’s this rule, or protocol, rather. No matter what happens, feeding therapy doesn’t stop. If there’s vomiting, refusal, screaming, crying, nothing . . . nothing is going to stop feeding. The feeding therapy session doesn’t stop until that beeper goes off, that’s part of the structured meal. So she sat there with 10 minutes left and I’m cleaning the vomit up off the table, her face, hands, and neck . . . then distracting her and continuing to prompt her to take bites. I nearly puked seeing the puke rags hidden on the corner of the table that I had pushed away, while watching her eat. Ecckkk. But that’s just it, right now she isn’t puking b/c of CVS and I don’t believe it was the Gastroparesis either, I believe it was b/c of too much volume OR just the SPD (Sensory Processing Disorder/Oral Aversion). Either way, she finished eating like a champ. Yuck. Great job, Posie!

This morning she ate a boiled egg. Yep! She liked it so she got it at snack tonight, too! She also tried chicken noodle soup (it was pureed) and she liked it as well. Sweet!

I got to talk to the Pre-Op Nurse today for my surgery and we were actually on the phone for over half an hour. We had a good talk. I have to go up there on Monday for an EKG for the mitral valve prolapse to make sure I’m good for the surgery on Friday. Please pray for my surgery! So tomorrow is Posie’s big day! She gets her OT at 8:30, Feeding at 9, Speech at 10:30, Feeding at 12, Child Life at 1, OT at 1:30, OT at 2, Cook Group at 2:30, Feeding at 3, Group at 3:30, Playground at 4:00, Feeding at 6:00. I haven’t decided how I’m going to spend the day tomorrow for my free time. If I’m actually going to go have a meal in the cafeteria and just take my Bible and notepad downstairs with me, or get something and bring it back up. Or just have some devotional time and take a nap, skipping the meal altogether. Or take a shower with no audience. It feels weird to think I’ll have so much free time! We’re just a few days away from going home and we’re going to finish strong, please pray for Posie!