Last night went pretty well, she woke up a few times but went back to sleep till her morning bottle. I always laugh a little to myself in the morning when the nurses or techs come in and make the comment, “Oh you’re an early riser!”, when they see her up and about, teeth already brushed, hair fixed, dressed and ready to go. Because deep down I’m just thinking . . . yeah, but it’d sure be cool if she wasn’t. (I don’t know why b/c I’ve always been the one that got up earliest in my house, too, she probably gets it from me)

She worked hard in O.T. today and the first thing her SLP told me this morning was that they were going to have me sit in on all of her meals today. Tomorrow I start feeding by myself. Now they’ll still be in the room w/me tomorrow, they will just be sitting there observing and documenting. Then at some point it will move to where they’re on the outside of the room.

She’s really progressing, occassionally she has to be reminded on how to hold a fork or corrected hands-on, where they pick it up at the same time and show her, but she’s got it down. She is handling the textures well. Today she tried a Nutrigrain bar (a tiny bite) and some cereal. She did vomit after her second feeding of the day, but I was so proud of her for eating some bites of a hamburger (she’ll only eat McD, it has to be that processed slim patty and this wasn’t, woohoo). Oh yeah, the little girl that was admitted is little! She’s maybe a year old, and the little boy, less than 2. She probably won’t be making besties there, but she sure loves Ms. Aura.

She got to play outside for a while and she was surprised in the room with her new best friend, Aura. She loves Ms. Aura, I’ve shared pics of her before. She is one of the Child Life Specialists. She brought Posie a pretty pink blanket (that I’m sure was probably donated to the hospital, she was passing them out to the patients) and Posie was so excited. It’s yarn, and Posie won’t use anything other than her own “B”, but she immediately wanted to be covered up with the one that Aura brought her. Later they got to color for a short while before snack. This evening while we were having some FaceTime on the computer with her sister, Ms. Aura came to visit and told her she’d be back on Friday and they would have some special time together and Posie just hugged and hugged her. I am bringing Ms. Aura home with us. Kidding (not really kidding).

I ordered Posie some new panties today, this is a huge thing. She’s been in size 2t/3t since she was 3. But she’s gaining 100grams a day (they want her gaining around 5 or 6), and it’s finally time for some big girl panties (she’s about to turn 5 and hers are getting to snug finally). We played outside and the weather was incredible!

Tomorrow I’ll be feeding her and also having our next Huddle (meeting) and I’m a bit anxious about how that may go. I know whatever decision is made it will be what’s best for her, but it’s possibly going to be removing another bottle (we’re down to 2 1/2 altogether) and I definitely already have dark circles under my eyes from the stress of the long last couple of weeks. Don’t get me wrong, I believe we’re undoubetdely supposed to be here, but that doesn’t change the challenges. Tomorrow will surely be a big day for her, for both of us. Please pray for Posie!