Last night. Wowzers. That was basically a circus. I’m not sure what I expected but after I got off my computer we sort of just had a train of ppl in and out. Techs 2×2, then nurses, the PA, housekeeping, the charge nurse and then some other aid. We took a shower and the nurse was back. Posie took her “pink” like a champ (that’s her erythomycin). The nurse said she would come back and try to sneak the MOM & Periactin into her milk. A little bit later she came and asked how to go about Posie’s next “pink” med . . . I was confused. She said they put the order in for 3:15 a.m. Come again? I told her I had no idea, we’ve never given it at that time before. Also Idk how that’s going to work b/c if they try to do that every day, neither of us is getting any sleep at all. She said I could talk to the dr about it the next day (and that she would as well). Yikes! Yes, please let’s change that order. 🙂

Oh, geeze. Lil’ miss! Last night we took a shower and then got dressed and while we were in the bathroom and I was bending down, grabbing at my leggings (Yes, LuluRoe, thanks Buhite), I was desperately trying to pull them up over my wet skin. Posie looked up at me and said, “You know mommy, I have short ones and you have long ones.” I thought, “That’s funny, you don’t have any leggings!” When I looked up I noticed she was pointing to my breasts. Yeah, it’s making some sense now.

That girl, goodness!

I’m not going to lie, I could definitely squeeze someones neck right now. I had some pretty stressful stuff going on yesterday that I can’t talk about on here, but it has caused a lot of stress. If you want to pray for me, I’ve got some specific prayers for you. You message me and let me know. Oh, by the way, by “squeeze someone’s neck right now”, I don’t mean choke anyone out. I mean hug. Hahahaha!

Today has been BUSY!

We actually got up at 3 am for her antibiotics b/c the dr put in the order for every 8 hours instead of 3x a day. But they’ve since fixed that so we won’t have to do that again. Yay! She’s kind of been up since then, really.

We started our day off with feeding therapy at 9:00 AM. Then we had speech therapy at 10:30 AM. Then we had a lunch meal at 12:00 PM. Then we had occupational therapy at 1:00 PM. Then we had a meal at 3:00 PM. Then we had a meal at 6:00 PM. We went and played outside between our 9-10 am therapies, then we played outside again after our evening meal. She did get to have her Pediasure bottle one time, right after occupational therapy, and she’ll be able to have her bottles as she asks for them between 6:30 PM – 6:30 AM. But she’s only allowed one bottle during the day. Yikes! Now, she’s done pretty well today. She’s only asked for it a few times and didn’t get really upset when I told her not yet. So that’s really good.

She did REALLY really well for her first day of all day therapies! I’m so impressed! We didn’t have any free time today really. We did have a few minutes (about 5-10) to call her daddy and sissy really quick but other than that it was so busy. The therapies were really back to back and any time we were in our room we had company (techs, nurses, housekeeping, dr, social worker, feeding intake coordinator, OT, etc). Everyone here is being so kind and helpful. We are so blessed.

She got a new bracelet. It’s a security bracelet that will alarm if she goes past any outside door, even the door to the gated in playground. It has to be turned off the nursing station with mom present each time we want to go outside. Any bets on how long it’ll take us to set the alarm off? Because I’ll forget?

I had the opportunity to share my faith back to back with two staff members of the hospital up here and it was just awesome how God gives us opportunities to speak to others about Him and what He’s doing in our lives. I feel very blessed He afforded me that opportunity today with those women.

The way therapy works here is they weigh everything. Every single thing. When they offer her a drink of water or pediasure, they weigh the cup first, then give her a drink, then weigh it again to see how much she consumed. This is for every drink. They record every single bite. Today they offered her pediasure through a cup with a straw (she barely took a sip) and then later she drank from a medicine measuring cup.

She was invited to two birthday parties in the playroom today but they had the lights off and some bright flashing lights and it was really loud so we didn’t get. We missed the opportunity to play in the play room today since it was being occupied with the parties, hopefully tomorrow we can swing down there. We’ve been trying to come to our room for 15-20 minutes between therapies to rest.

We’ve been given our schedule for tomorrow. Tomorrow she’ll have am feeding from 9-930 and start OT right at 930 (she’ll have a second OT later in the day), it’s going to vary on times and numbers day to day.

A friend of mine was doing an overnight shipment of a baby bottle brush for me b/c I’d forgotten my bottle brush. And a sweet friend of ours contacted her daughter who lives here, and she messaged me today asking if we needed anything, which we’re good at the moment, but it’s so kind of her, it just blessed me!

We are already showered and ready for bed. She’s so tired. They’ve tried hiding her MOM and Periactin in her milk and bringing it to the room but she cried that her milk tasted old and wouldn’t drink it. Prayerfully mama can get her to drink some in a bit (she’s only had the six oz in the past 24 hours).

Big Win! Some of our friends blessed her with a box of goodies before we came and it ended up being a saving grace since mom didn’t bring toys (I thought this facility was different and geeze, mom fail, showed her the website and everything she’d see but this was actually just a branch of the main one, so there’s nothing like that here. But she’s doing well with it, and just, I’m so thankful for those friends!) I’m probably repeating myself. Sorry. I’m not sure what I have went over and haven’t.

Oh. My. Stars.

Tonight she ate everything at feeding therapy. Now, she has only had 6 oz of Pediasure in the past 24 hours, so is probably super hungry, but she ate all the pringles and most all the diced apples. (They’re seeing how she eats AND how well she eats things she likes/tolerates today). They will tweak her diet every day to introduce new things. There’s a lot to do in the next 28 days. Please pray for Posie!