Today is the day. It happened. We got approval from the insurance to head out of state to a specialty hospital for my little one!

God worked a miracle to get us here.

The hotel we had reserved prior to coming was gracious enough to move our hotel reservation for us a few times and when we called the last time they did inform us they wouldn’t move it again, if we didn’t show up Tuesday, we weren’t going to get our room (or a refund). And we knew that insurance could go either way, so we resolved to come to the hospital anyway and pick up the tab for whatever insurance didn’t approve, one way or another . . . b/c we’ve prayed for this for so long and I had an incredible peace that this was where we were suppose to be. If you haven’t felt that peace, you won’t get it. God’s peace.

But today the phone rang first thing and the hospital was calling to tell us that insurance was going to approve us to come . . . and we threw our bags in the car and here we are.

Posie did good every now and then but had a lot of tears and crying . . . she constantly cried, “I need my sister”, “I want my sister”, “I miss my sister”, “My sissy needs me”, and very similar cries. It was so hard to listen to for the 5 hours coming down here (It could be a 3 1/2 hour trip but we have to take into account potty and puke breaks for her). It was a long day.

We went to a convenient store and then took her to McDonald’s hoping she’d eat. Both places we went she carried in this card that her bestie, sissy Baylee, gave her when we went to church this morning. She’s carried it with her everywhere since then.

She was pleased to do a little shopping at BUC-EE’S. She picked out a gift for her besties, her sissys, and even found a couple of lovey’s for herself. Dad let her take them, happy that she was excited for her new “buddies” to go to the hospital with her.

We had lunch together before we got to the hotel and for dinner her dad brought something in. She did eat a little bit, then she ended up puking multiple times. Bless her heart, she said, “I’m sorry mommy, forgive me”. I could’ve cried right there, I don’t know why she asked me to forgive her, I’ve never been upset with her for puking, but it sliced to my heart to hear those words. She took a shower and snuggled up in the bed . . . got lots of hugs from daddy, then he prayed with her, and gave her one last hug bye. She cried so hard for him, but mostly for her Zozo.

She asked me, “Mommy, how long do I have to stay in the hospital?” I said, “We’ll probably stay for 30 days.” She said, “Not 100, because that’s too many, I might stay for 10!” I just giggled to myself. I love her.

Now we lay on this big hotel bed together, and every five minutes she cries, “I want to go home”, or “I’m scared”, and then she goes back to watching her “Egg Surprise” on her tablet.

The hotel said I could stay until 1 PM tomorrow for late check out, which is a blessing, but I’m not supposed to go to the hospital until 2:30-3:00. So the shuttle will be taking me to the hospital around 1:15 and we’ll just have to hang out, with all of our stuff, till we can get admitted. Prayerfully, the shuttle ride is good and she does fine. It just occurred to me that I don’t have a carseat for her to sit in. Ugghhh! The hotel isn’t far at all from the hospital but they said the shuttle will take us to the airport and somewhere else before it takes us to the hospital.

I wish I had someone staying in this hotel room with me tonight. I’ve never been nervous about being in a hotel before, but tonight I don’t want to be alone. And my word . . . my heart palpitations earlier. Being in another state and watching the news, the weather, knowing that my little girl was sitting under a wall cloud and taking cover during a tornado warning. That was a helpless feeling. I’m so thankful for true friends who I know love my child and will take care of her.

I hope she knows that I love her, and I’m doing whatever I can to help her.

Tomorrow is going to be a busy day. Getting up early, snuggling with this sweet one, packing our stuff, and heading to the hospital. We won’t start our therapies until Thursday morning. It’s going to be a big week.

I love you all! Please pray for Posie!